This past week has been so many things ... exhausting, stressful, scary, and now relieving. On Saturday my parents came down to stay with us for the week of Annabel's surgery. On Monday, my sister, Marci, came to help as well. Marci and Dad stayed in College Station with Maddie while Mom, Jared, and I stayed in Houston with Annabel.
On Monday, Jared and I got up early to head to Houston. Annabel first had a CT scan of her head. Then we went to the neurosurgeon's office for our pre-op appointment. Next, we were off to the surgery department to register. Finally, we took Annabel to the lab so that they could check Annabel's blood type. Jared and I had both donated blood the week before so that they could use it during the surgery, but we didn't know for sure if either of our blood could be used. It turned out that they were able to use blood one of us donated for the transfusion during surgery.
After all of our appointments, Dad, Mom, Marci, and Madison met us in Houston for some fun that afternoon. We went to the zoo for a few hours and then to Cheesecake Factory for dinner. Then Dad, Marci, and Maddie headed back to College Station so that Maddie could go to preschool the next day.
Here are Marci and Maddie at the zoo waiting for the sea lion show to start.
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On Tuesday morning, we were at the hospital at 8:30. Her surgery was scheduled for 10:00, but they were running late that morning. The poor baby was not able to eat from 6:00 until about 12:30 when they finally took her back for surgery. Waiting for them to come get her and then watching them take her away were some of the hardest parts. This is when we first saw her after surgery, hooked up to lots of machines and really swollen.
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The first night she spent in a step-down room, just one step below the ICU. Fortunately, two of us were able to spend the night there with her.
The day after surgery, her swelling started to go down enough that she could open her eyes. She was even smiling at us while we played peek-a-boo that evening. She also loved being carried around the halls of the hospital. Texas Children's hospitals have great decorations. She really loved the pictures and the fish tank that was right across from her room.
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We got to come home after just two nights in the hospital. Here is a pic of Annabel with Marci just after we got home. It is amazing how much she was back to herself after just two days.
Nana sent a balloon and a stuffed giraffe to her at the hospital. She cuddled with the giraffe at the hospital and the balloon has been a hit since we got home.
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Finally, I tried to take some pics to demonstrate the difference before and after surgery. I am not sure that these do it justice. Annabel had sagittal craniosynostosis, meaning the suture that runs down the top of the skull from front to back had fused prematurely. Therefore her head would have continued to grow long and skinny. You can see in this first (pre-surgery) picture that her head had already started to grow in this manner. You can also see that the back of the head (on the left) is narrow.
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This picture was taken today after some of the swelling has gone down. You can see her scar. It is a zig-zag running from ear to ear. You can also see that the back of her head is already wider than the front.
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Next week, she will get fitted for a helmet that she will wear for a couple of months. It will hold the front and back of her head in place so that her head can grow side to side into a more round shape as she grows.
For now, she seems to be mostly back to herself, playing and happy and mostly pain-free. She is having some trouble going to sleep. I am not sure if she is scared to go to sleep or if it is a bit uncomfortable. This does seem to be getting better though.
We still have lots of follow up appointments to go, but it is so wonderful to have the surgery behind us.